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AGAIN I AM HERE...MY HEALTH IS DECLINING AND THINGS ARE JUST SO DIFFICULT AND I KNOW I AM NOT ALONE.  ANY FINANCIAL CONTRIBUTION WOULD BE SO APPRECIATED..I DON'T KNOW WHAT ELSE I CAN DO.  I AM SKILLED AND EDUCATED IN SO MANY DIFFERENT AREAS AND YET I CANNOT WORK....HELP!

Dear Rosie, thankyou so much for your message.  Sometimes I feel like I am being so dramatic but at this age the school doesn't want "parental help".  They are expecting these children to "advocate" for themselves - as if another problem would most likely occur for being a "snitch".  The whole thing is very frustrating and emotionally exhausting.  I will check with the YMCA here because that is a wonderful idea and I knew nothing like that exhisted....I live online trying to find alternatives for everything.  Great words of advise and thankyou so much for your empathy - you are one of few beautiful people left in this corupt world.  :)  Warm thankyou & best wishes,

~karla

Well I wish I had better news but I don't.  School is out for the summer and all the anger and rage my child felt from this school year is like the elephant in the room always.  There is so much frustration and rightfully so.  Unfortunately I am the "safe" person to lash out at.  Of course due to my health I have so much guilt over what I have no control of.  I am trying to make things better and am constantly seeing a specialist. 

I am so grateful to anyone who takes a moment of their time to read what I have to say.  I am not some scammer or person waiting around for a hand out.  I just want my child to feel better and get caught up in school with this virtual schooling, and for my health to get better controlled.  The problem at this point is finding out the major health problem I am having.  Since my last post I have been prescribed a cane, a walker, and even the legal handicap parking notice you hang in your vehicle.

Special thanks to PHILS and all others interested in helping through this wretched time.  I know by a long shot we are not the only ones.  So thankyou very much.

 Sincerely, karla

I have a post for my child and I on this aid page due to the fact that we are in need of so much help.  When my child was very young there was something different.  This is a very angry, hurt, and beyond frustrated child living with tourette's syndrome.

The hardest thing for us is that it is just my child and I.  My health problems are chronic and due to the intense bullying at school I had to make a drastic change.  This next school year I have to transform my dining room into a schooling area for the virtual schooling that will now be taking place.

There is something really wrong, in my opinion, when our children are denied their education because their disorders are so misunderstood and rather than additional help the schools are spending money to help troubled children in school.  This was the first year of middle school and a living nightmare.  We dealt with cutting and other self destructive behaviors due to my child trying to understand what he is living with when even an educated adult cannot understand it.

With special needs students they are just that - students with special needs, not some out of control or unmanagable child who lacks structure in the home.  As these kids are growing up with these disorders and are still seeing a therapist and psychiatrist for medicine to help with their control in their bodies that they aren't able to control no matter how badly.  This is not a disorder where you have to retrain the brain, it is a neurological illness and is often inherited.

I know that there are so many families out there who are experiencing problems in school, dealing with the fact that something may be different in their child but have had so many wrong diagosis's.  As their bodies change and puberty sets in it makes the medication difficult to manage which then makes the entire complexion of the disorder ten times harder to get control of.  It is not right that now I have to play parent and teacher's aid to my child because of the lack of education my child has been given.  I feel for any special needs child & their family.

The actual disorder of tourette's or any other chemical imbalance in the brain causing difficulties with our children seems to be looked at as the "I'm so sorry" syndrome.  Right now I am dealing with a monster.  The built up rage, holding in the tics, having been punished by missing recess and so on has made for a very angry young person and very hurting heart.  How do we repair the damage that has been done?  Wouldn't it be nice to turn back the clock and be able to demand more, learn our laws more, know our rights better....but we cannot.